Patientslikeme – Insight Sciences

Personal Genome Project picks up participants

September 1, 2012 by timbatchelder, posted in Health Informatics, Knowledge Management, Network Science

Personal Genome Project – Homepage.

Personal Genome Project Posts DNA Info Online (npr.org)
Years to Regeneration and Antiaging via Stem Cells and Gene therapy per George Church (nextbigfuture.com)
George Church, Harvard genetics professor, banters with Stephen Colbert (boston.com)
Open-source science helps San Carlos father’s genetic quest (mercurynews.com)
Do-it-yourself biotech: Ellen Jorgensen at TEDGlobal 2012 (ted.com)
Across 1,000 genomes, rarities abound (sciencenews.org)
1000 genomes study is ‘guidebook’ to how genes vary (eurekalert.org)
Decoding ENCODE (genotopia.scienceblog.com)
The groundbreaking ‘genetic guidebook for humans’ that could lead to radical new personalised treatments for everything from cancer to heart disease (dailymail.co.uk)

Social networks make medicine human again

May 15, 2009 by timbatchelder, posted in Digital health, Knowledge Management, Regenerative Economy

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An excellent article in Businessweek highlights the fact that Social networks like PatientsLikeMe let people take charge of their own care—changing the nature of drug research and the practice of medicine

Deals of the Week Ponders PatientsLikeMe and Empowerment (invivoblog.blogspot.com)
Merck to draw on social network for psoriasis patients (fiercebiotechit.com)
Merck’s partnership with online patient community could offer innovative way forward for drug development (medcitynews.com)
Online community PatientsLikeMe gets $2 million in new equity investments (medcitynews.com)
Patient-led “clinical trials” versus clinical research (2012 edition) [Respectful Insolence] (scienceblogs.com)
Social network alchemy (thetechblock.com)
The perils of “patient-driven” clinical research (sciencebasedmedicine.org)
Better medicine, brought to you by big data [GigaOM] (gigaom.com)
Healthy Labs launches its social network for people with chronic conditions (venturebeat.com)
Healthy Labs creates social networks for diseases (vator.tv)

Google replaces CDC, Patientslikeme Replaces FDA?

November 19, 2008 by timbatchelder, posted in Data Governance, Health Informatics, Information Visualization, Knowledge Management, Network Science, Security & Privacy

As more web driven mass crowd sourced health data is collected by large search and portals and organized it is being packaged and anonymized to provide services that normally took many months to years and required whole separate agencies and departments to run. So for example Patientslikeme is now making possible users with health conditions to provide reports on conditions in a standardized manner which provides web based “user driven” trials that can quickly provide important feedback on therapies. Similarly Google can now beat CDC in predictive value for flu outbreaks. Read on…

Online community PatientsLikeMe gets $2 million in new equity investments (medcitynews.com)
Deals of the Week Ponders PatientsLikeMe and Empowerment (invivoblog.blogspot.com)
CDC reports 7 Salmonella infections in Alabama linked to Cantaloupe (al.com)
Merck’s partnership with online patient community could offer innovative way forward for drug development (medcitynews.com)
The perils of “patient-driven” clinical research (sciencebasedmedicine.org)
Merck to draw on social network for psoriasis patients (fiercebiotechit.com)