Tag: ALS Therapy Development Institute

Social networks make medicine human again

by timbatchelder, posted in Digital health, Knowledge Management, Regenerative Economy

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An excellent article in Businessweek highlights the fact that Social networks like PatientsLikeMe let people take charge of their own care—changing the nature of drug research and the practice of medicine

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Google replaces CDC, Patientslikeme Replaces FDA?

by timbatchelder, posted in Data Governance, Health Informatics, Information Visualization, Knowledge Management, Network Science, Security & Privacy


As more web driven mass crowd sourced health data is collected by large search and portals and organized it is being packaged and anonymized to provide services that normally took many months to years and required whole separate agencies and departments to run. So for example Patientslikeme is now making possible users with health conditions to provide reports on conditions in a standardized manner which provides web based “user driven” trials that can quickly provide important feedback on therapies. Similarly Google can now beat CDC in predictive value for flu outbreaks. Read on…

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